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BIOETYKA / WPROWADZENIE - Przeglądy aktów prawnych
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Universal Declaration on the Human Genome and Human Rights – UNESCO 1997


B. Rights of the person concerned

Article 5

  1. Research, treatment or diagnosis affecting an individual’s genome shall be undertaken only after rigorous and prior assessment of the potential risks and benefits pertaining thereto and in accordance with any other requirement of national law.

  2. In all cases, the prior, free and informed consent of the person concerned shall be obtained. If the latter in not in position to consent or authorization shall be obtained in the manner prescribed by law, guided by the person’s best interest.

  3. The right of each individual to decide whether to be informed or not on the results of genetic examination and the resulting consequences should be respected.

Article 7

Genetic data associated with an identifiable person and stored or processed for the purposes of research or any other purpose must be held confidential in the conditions set by law.